My Ongoing Battle With Cancer

HEADS UP FOR THOSE IN A SIMILIAR SITUATION

My cancer journey began in 2007 when I was 60 years old.  Prior to that I was never sick (after typical childhood illnesses), not even with a cold or the flu.  I exercised regularly, lifted weight, 80% active, and ate healthy.  I had also stopped smoking and stopped drinking alcohol 20 years earlier.

My first diagnosis was non-Hodgkins Lymphoma (SLL) and went on a monthy infusion regimen of Rituxan (infusion lasted 6 hours).  No side effects.  A few years later, I woked in Northern KY (came home on the weekends) and that Oncologist put me on a regimen of Rituxan, Cytoxin, and Fludara (over two days).  Side effects were extreme and I ended up in the ER two days later to stop cronic vomiting.

HINT:  ask for 2 different kinds of nausea meds with 4-6 hour intervals.  That way, you can take a nausea pill every 2 hours.

HINT: start taking nausea meds two hours after the end of your infusion...  DO NOT WAIT UNTIL YOU FEEL SICK...  TOO LATE...

Twelve (12) months later, I returned to TN, and my original Oncologist put me on a regimen of a monthly infusion of Triandra (2-3 hours).

Three years later, I was diagnosed with Melanoma which some experts say was actually caused by the repeated use of Cytoxin and Fludara.  However, malpractice would have never been proved.

My melanoma started in my foot, moved to my groin, then moved to my neck.  The movement took place 4 years after, a surgeon removed the melanoma from my foot with clean margins.

NOTE:  bear in mind, that my Oncologist had to deal with two cancers simulataneously (and still does) both of which had turned aggressive and surgery was out of the question.  What worked for me was Odivo/Yervoy combination for a few months, then Opdivo and Radiation.  The radiation supercharges the Opdivo.  For me, it worked....

Whenever you are given chemotherapy or immunotherapy you will be given steroid to reduce the risk of nausea plus other meds as well.  These steroids will make you gain weight.  I gain 50 pounds in 10 years and manged to lose 30 pounds.

NOTE:  the way I lost weight, which may not work for everyone, is counting my calories.  I focused on eating 1,500 to 1,800 but not over 2,000.  I also ate small meals five times a day and my focus was on SOUPS.

I am now in my 15th year of being treated for cancer and in my 12th year of being treated for 2 cancers simultaneously.

Here is what I constantly live with:

1. Low white blood count (no immune system)

2.  Low red blood count (anemia)

3. Low Platelet count (blood clotting issuse)

4. Constant fatigue (mild to severe - varies)

5.  Loss of taste

6. Thyroid problems

7. Lymphodemo (moderate)

8. Depression (mild to moderate)

9. Weight gain

10. Diarrhea/Constipation (mild to moderate)

11. Mouth Sores (mild to moderate)

12.  Must avoid direct sunlight exposure (UV Clothing)

13. COVID might have killed me so I was very careful!!!

14.  Must avoid being in large crowds in closed in areas

15.  Must maintain a strict diet

NOTE:  My cancer(s) are made worse by a triple bypass heart attack that I had also when 60 years old.  Plus, a five level lower back fusion.

Previous Solar Flares - Geomagnetic Storms

When a solar flare hits the Earth's magnetic field, it can result in a solar storm that affects the power grid and radio communication.

Experts at SpaceWeather.com stated: "A beautiful solar flare (M4-class) on April 29th hurled a CME into space. It might sideswipe Earth today.

"The glancing blow, if it occurs, could spark a minor G1-class geomagnetic storm on May 2nd or 3rd."

A CME stands for coronal mass ejection, a type of solar flare.

It's essentially a huge expulsion of plasma from the Sun's outer layer, called the corona.

This mass ejection of particles from the Sun travels through space and the Earth uses its magnetic field to protect us from damaging radiation.

Each solar storm that hits Earth is graded by severity and this one is only expected to be a "G1 minor".

This means it could cause weak power grid fluctuations and have a small impact on satellite communications.

Fortunately, solar storms aren't thought to be dangerous to humans on Earth.  READ MORE...

Smartphone Radiation

Radiation Emissions of Popular Smartphones
Smartphones have become an integral part of our everyday lives. From work and school to daily tasks, these handheld devices have brought everything into the palm of our hands.

Most people spend 5-6 hours on their phones each day. And, given that our phones emit a tiny amount of radiation, we’re exposing ourselves to radiation for hours each day.

But different phones emit different amounts of radiation.

With the help of data collected by the German Federal Office of Radiation Protection, we visualize the radiation emissions of some popular smartphones in the market today.

Radiation and SAR Values of Smartphones
Smartphones and other mobile devices emit tiny amounts of radiofrequency (RF) radiation. Humans can absorb this radiation when the smartphone is being used or is lying dormant anywhere near their bodies.

The parameter used to measure phone radiation emissions is the Specific Absorption Rate (SAR). It is the unit of measurement that represents the quantity of electromagnetic energy absorbed by the body when using a mobile device.

The Council of the European Union has set radiation standards for cell phones at 2 watts per kilogram, measured over the 10 grams of tissue that is absorbing the most signal.

SAR values are calculated at the ear (speaking on the phone) and at the body (kept in your pocket). For the purposes of this article, we’ve used the former calculations.

Smartphones With the Highest Levels of Radiation Emissions
The Motorola Edge has the highest radiation emission with a SAR value of 1.79 watts of radiation per kilogram. That’s significantly higher than most other smartphone models in the market today and close to the limits set by the EU for cellphones.

Coming in second is the Axon 11 5G by ZTE with 1.59, followed by the OnePlus 6T at a close third with 1.55 W/kg. The Sony Experia AX2 Plus with 1.41 and the Google Pixel 3 XL and 3A XL at 1.39 round out the top five.

Here is a look at the 10 smartphones that emit the highest level of radiation:  

TO FIND OUT MORE ABOUT THESE 10 SMARTPHONES, CLICK HERE...

Ongoing Cancer Treatments

Fifteen years ago, or 2007 to be more precise, I was diagnosed with non-Hodgkin's Lymphoma or SLL and in 2008 started treatment being infused with a drug called RITUXAN.  Two years later, I had a silent heart attack and instead of having a triple bypass, I had 5 stents inserted into 3 left heart ateries, 3 of which went into the LAD.  In 2012, and quite possibly because of my cancer treatments, I contracted Melanoma which started in my foot, spread to my groin, and then to my neck.

Over the course of my cancer treatments, I have had chemotherapy, surgery, radiation, and immunotherapy to simultaneously control my two cancers.  I am not eligible for any clinical trials because I am battling two cancers simultaneously.  Currently, I am being treated with immunotherapy drugs:

• Opdivo infusions for my Melanoma - monthly infusions
• Imbruvica (pills) - 240 mg daily
• IVIG infusions to help boost my immune system

This past Thursday, I had my 55th Opdivo infusion and so far there have been no adverse side effects except for night sweats, anemia, low immunity, and fatigue.  My body seems to be tolerating it fairly well according to what my Oncologist said during our office visit.

On Monday morning, I go in for my monthly infusion of IVIG to help boost my immune system and according to my Oncologist, there is no reason why I cannot have both infusions on the same day...  which is what I will be doing from now on starting in February.  I will have my morning infusion, then go to the cafeteria at the hospital, grab a bite to eat, surf the web, and go to my second infusion an hour or so later and be home by 4/5 that afternoon.  Long day, but don't have to go twice.

As far as I can tell, I will be taking some sort of cancer treatments for the rest of my life, even if the doctors are confident that the Melanoma has left my body and is not returning...  because my SLL is the type Lymphoma that never leaves one's body once it is there.  What a pisser...

Martian Caves Offer Protection

Cave Entrance

There are very good reasons why Mars is such a desolate, barren landscape. With no thick atmosphere nor a magnetic field, the Red Planet’s surface is bombarded daily by radiation up to 900 times higher than seen on Earth. However, some places are sheltered. New research has found that cave entrances are shielded from the harmful radiation that normally hits Mars. This may make them ideal as both sites for future settlements and robotic missions meant to scour for signs of alien life.

Despite amazing advances in space exploration in the last decade, if we’re going to take the idea of settling Mars sometime during this century seriously, there are many challenges that need to be overcome. That’s unless we’re content with one-way suicide missions.

There’s no shortage of environmental hazards out to kill any astronaut bold enough to dare set foot on Mars. For one, the planet only has 0.7% of Earth’s sea-level pressure, meaning any human on Mars must wear a full pressure suit or stay barricaded inside a pressure-controlled chamber, otherwise oxygen wouldn’t flow through the bloodstream and the body could swell and bleed out.

Then there’s the issue of radiation. Mars is farther away from the Sun than Earth, receiving roughly 60% of the power per square meter seen on a similar site on Earth. But since Mars doesn’t have a magnetic field to deflect energetic particles, coupled with the paper-thin atmosphere, its surface is exposed to much higher levels of radiation than Earth. Furthermore, besides regular exposure to cosmic rays and solar wind, it receives occasional, lethal radiation blasts due to strong solar flares.

Measurements performed by the Mars Odyssey probe suggest that ongoing radiation levels on Mars are at least 2.5 times higher than what astronauts experience on the International Space Station. That’s about 22 millirads per day, which works out to 8000 millirads (8 rads) per year. For comparison, the people in the U.S. are exposed to roughly 0.62 rads/year on average.  READ MORE

Surviving & Living With Cancer(s)

When I was 60 years old (2007) I was diagnosed with non-hodgkin's "b" cell lymphoma and was told by my oncologist that this type of cancer would never leave my body.  my cancer was staged at level iv which in many cases is terminal but in my case it was because the lymphoma was in my bone marrow.  

My treatment began with monthly infusions of rituxan which took about 4-6 hours depending upon how busy the chemo nurses were.  For several years my lymphoma grew but grew slowly and slightly.

in 2010, i experienced a heart attack while walking on the treadmill and an angioplasty operation revealed that I had three blocked arteries.  between 2010/2011, I had 3 heart surgeries and had 5 stents inserted and have had minimal problems since.

In 2011/2012, I worked in kentucky for a few months and the oncologist there ordered Cytoxin and Fludara in addition to my Rituxan and it is widely believed that one of those first two drugs caused me contract melanoma.

After my melanoma was surgically removed from my foot, five years later it migrated to my groin and it was difficult to ascertain if it was the lymphoma or melanoma that was growing or both.

My oncologist treated me for both cancers and for a while, he was not sure if he was going to be successful in stopping their growth.  So, in 2017/2018, Radiation was added to my monthly infusions.

Fortunately, the two individualized treatments worked and both my cancers started to experience minimal growth if any growth at all.  Again, with a biopsy, my oncologist was unable to determine if it was the lymphoma or the melanoma that was growing.

After 13 years of chemo treatments, surgeries, radiation, and immunotherapy treatments, I have left with the following situation with which I must live:

1. hypothyroidism
   
2. Lymphodema in my left leg
3. Weight gain of 50 pounds (of which I have lost 30)
4. anemia due to very low red blood cell count
5. no immunity due to very low white blood cell count
6. low platelet count
7. intermittent nausea
8. High susceptability to squamous carcinomas (of which I have had 6 surgically removed)
9. constant mild to not so mild fatigue
10. no taste of food
11. swollen prostate
12. extreme sensitivity to sun rays
13. Extreme sensitivity to humidity
14. constant sinus infections
15. constant facial skin infections
16. Pink skin pigment has disappeared
17. Mouth soars
18. minor loss of hearing
19. intermittant blurred vision
20. intermittant diarrhea 
21. an increase in tooth decay
22. increase risk of afib
23. allergic reactions to bug bites
24. increased risk of deyhydration
25. minor bouts of depression

Are all of these related to my cancer treatments?

Well...

maybe yes...

maybe no...

Some could be related to old age or not...

But, the fact remains that I deal with this list on a daily basis and have gotten to the point where I don't even think about it anymore...  My limitations have just become a part of my life.

I don't really think about living with cancer, I just think about living my life, one day at a time, while trying to make the most out of each day.  If I make the most out of each day, then I consider myself to be living a successful life and living a successful life is, for me, a form of happiness.

There were many days still lodged in my memory banks where I laid on the tile floor in the bathroom, puking my guts out....  I remember my body convulsing and arching as I tried for many seconds to bring up through my throat what my body did not want.

I remember those episodes lasting for hours as my body heaved and pulled from the inside...  my upper body became super hot and broke out in sweat that made me feel I had just gotten out of the shower.

I was completely exhausted from the vomiting and laid on the tile floor waiting for the next episode to grab hold of me...  Sometimes, it would get so bad and of a long duration that my wife would take me to the ER.

i don't like being around stangers in a waiting room when i am convulsing and vomiting and trying to puke out what little is left inside.  It is embarrassing and rather humiliating but necessary.

Those days are gone for good I hope...

Living With Cancers & Heart Disease

For the last 13 (almost 14 years) I have been dealing with heart disease from the standpoint of having a heart attack from 3 blocked heart arteries and 5 stents inserted.  Results are that my heart is working normally but I have to be really careful with what I am eating and really careful with my physical exertion so as not to overdo it.  I have handicapped liscense plates because I can no longer walk very far without being out-of-breath.

For the last 13 (almost 14 years) I have been dealing with preventing two types of cancers from simultaneously growing in my body and for the first 10 years was not that successful but for the last 3 years have been relatively successful...

During the last 13 years, I have experienced surgery, chemotheraphy, immunotherapy, and radiation.  My treatments have caused me to experience nausea, fatigue, anemia, and a destroyed immune system along with damaging my thyroid.

The treatments that I took to suppress my Lymphoma caused me to contract Melanoma which from the getgo was very aggressive and moved from my foot to my groin to my neck...  however, once it got to my neck and was surgically removed, the cancer cells were all dead.

I get a PET scan or a CT scan every 3 months to see if my cancers are displaying any metabolic activity.  My next scan is this coming Monday or in two days.

Other than having cancers hanging over your head and having to watch what you eat, and how you must dress when out in the sun, I am living a relatively normal life. 

I don't eat red meat except for maybe once or twice a year.  I don't eat fried foods except for maybe once or twice a year.  I stay away from sugar but that is not as easy as it sounds.

I eat veges, chicken, veal, a variety of beans, and fish mainly.  The fish I prefer is Salmon, Cod, and Flounder.

IVIG Day

WHAT IS IVIG?

Intravenous immune globulin ("IVIG") is a product made up of antibodies that can be given intravenously (through a vein).

Antibodies are proteins that your body makes to help you fight infections. Each antibody made by your body is slightly different, because it fits like a lock and key to every foreign substance (such as a piece of a virus or bacterium) that gets into your body. Over the course of your life your body makes thousands of different antibodies as you are exposed to different infectious organisms that your body considers to be "foreign."

IVIG is prepared from the blood donated by thousands of people, to make a super-concentrated and very diverse collection of antibodies against many possible infectious organisms your body might encounter.

WHY DO I NEED IVIG?

IVIG is used primarily in two situations.

One reason you might need IVIG is if your body does not make enough antibodies. This is called "humoral immunodeficiency." The IVIG simply provides extra antibodies that your body cannot make on its own. The antibodies usually last for several weeks to months and help your body fight off a large variety of infections. If you are getting IVIG for this reason, you will need to get it on a regular schedule.

A second reason you might need IVIG is if your immune system has started attacking your own body by producing antibodies directed against your own cells. Conditions in which this happens include:

●Destruction of your own blood platelets (known as immune thrombocytopenia [ITP])

●Destruction of your own red blood cells (known as autoimmune hemolytic anemia [AIHA])

●Attack on your nervous system, such as nerves that control your breathing (in Guillain-Barré syndrome) or nerves that control sensation (for example, in chronic inflammatory demyelinating polyneuropathy [CIDP])  SOURCE:  UpToDate Patient Education


I receive monthly infusions of IVIG because my Oncologist fears that my low immunity and anemia from over a decade of cancer treatments that have included:  surgery, radiation, chemotherapy, and immunotherapy, puts me in a HIGH RISK CATEGORY of contracting other life threatening illnesses.

Today, is the day that I get my monthly infusion.  I will arrive at UT Medical Center around 7:00 am and finish around 10:30 am and like always will be receiving premeds to keep from my getting sick.  The nurses will access my port on the right side of my upper body.

Of the two and a half hour treatment, I will probably sleep for about 90 minutes due to the premeds...  it's weird at first as I feel lightheaded and weak and my legs feel restless...  then, my eyes get heavy and the next thing I know I am waking up and there's about 30 minutes left.

A New Perspective

For over 12 years I have been battling with non-Hodgkin's "B" cell Lymphoma or SLL (see my blog My Cancer Pilgrimage) and after 5-6 years of receiving monthly chemo infusions, my body contracted Melanoma that started on the bottom of my left foot, spread to the left area of my groin, then to the left area of my neck.  So, for 6-7 years I have been fighting off two cancers simultaneously.  Also about 12 years ago, I had a heart attack (not associated with my cancer treatments) that resulted in the recommendation to have a triple bypass but I went to NYC and had my arteries cleaned out and stents inserted...  5 stents in all.

I feel incredibly fortunate to have lived with cancer(s) for over a decade and I am still alive...  it must not be my time...  or someone or something is looking out for me...  it cannot just be coincidence...  that's too simplistic and melodramatic.

Each morning when I wake up and before I go to the bathroom, I sit on the side of the bed and just appreciate the fact that I actually woke up again.  This may not seem so special to you, the reader, but to me it is very special.  

In 2018, I had radiation treatments to slow down the spread of melanoma along with Opdivo infusions because the radiation was supposed to supercharge the Odivo...  which it did...  working perfectly...  and, several months later my Oncologist let it slip out that my cancer(s) had turned very aggressive and he was not sure if he was going to be to get them both under control...

I never knew this...  and, I am glad that I did not because my whole attitude would have changed and no doubt I would have gotten depressed, perhaps very depressed...  and, when one is fighting cancer, depression seems to make things worse.  ODD...  but a positive attitude actually helps fight the cancer sometimes.

But, each day is a blessing for me.

An appreciation of life.

A chance to see the beauty of life FREE OF CHARGE.

What's On My Mind Today???

Just got back from the University of TN Medical Center - Cancer Bldg. in Knoxville, TN after going through a PET Scan procedure...  Every 90 days, I MUST have a CT scan or a PET scan to determine staging of the cancers.  When cancer is staged, the Oncologist is informed by the Medical Physician interpreting the scans if the cancer has decreased/increased in size and/or spread to other organs in the body and/or started growing in a new location.

Over the 12 years that I have been treated for Lymphoma and the 6 years I have been treated for Melanoma, my cancers have increased, decreased, increased, spread, and maintained their size as new drugs are used to fight the disease.

Last year, my Oncologist discovered through a recent clinical trial at another hospital that when Opdivo and Radiation are used simultaneously that the results are more positive than negative.  When that cocktail of treatment was used on me, dead Melanoma cells were removed from my neck...  so, in my case, it worked perfectly.

Right now, my two cancers (non-Hodgkin's Lymphoma & Melanoma) are being contained...  at least those were the results from my last PET scan...  so, I am anxious to discover what these new results might be.
                                                                                                                       

ALSO, every time I leave home, I am really concerned about my health because of COVID-19 especially since I have NO IMMUNE SYSTEM of which to speak at all.  Today, I wore a face mask as well as disposable gloves.

Please take care of yourself and be careful when you leave the house...