Ongoing Cancer Treatments

Fifteen years ago, or 2007 to be more precise, I was diagnosed with non-Hodgkin's Lymphoma or SLL and in 2008 started treatment being infused with a drug called RITUXAN.  Two years later, I had a silent heart attack and instead of having a triple bypass, I had 5 stents inserted into 3 left heart ateries, 3 of which went into the LAD.  In 2012, and quite possibly because of my cancer treatments, I contracted Melanoma which started in my foot, spread to my groin, and then to my neck.

Over the course of my cancer treatments, I have had chemotherapy, surgery, radiation, and immunotherapy to simultaneously control my two cancers.  I am not eligible for any clinical trials because I am battling two cancers simultaneously.  Currently, I am being treated with immunotherapy drugs:

• Opdivo infusions for my Melanoma - monthly infusions
• Imbruvica (pills) - 240 mg daily
• IVIG infusions to help boost my immune system

This past Thursday, I had my 55th Opdivo infusion and so far there have been no adverse side effects except for night sweats, anemia, low immunity, and fatigue.  My body seems to be tolerating it fairly well according to what my Oncologist said during our office visit.

On Monday morning, I go in for my monthly infusion of IVIG to help boost my immune system and according to my Oncologist, there is no reason why I cannot have both infusions on the same day...  which is what I will be doing from now on starting in February.  I will have my morning infusion, then go to the cafeteria at the hospital, grab a bite to eat, surf the web, and go to my second infusion an hour or so later and be home by 4/5 that afternoon.  Long day, but don't have to go twice.

As far as I can tell, I will be taking some sort of cancer treatments for the rest of my life, even if the doctors are confident that the Melanoma has left my body and is not returning...  because my SLL is the type Lymphoma that never leaves one's body once it is there.  What a pisser...

Healthcare Happiness

I am the only member of our parent's family that is dealing with serious health issues and while one could say that it is my fault...  I would tend to agree with that in part because I did not know how to manage my stress...  and, it is not managing my stress that caused me to have a heart attack about 13/4 yeras ago.  

Prior to my heart attack, I had stopped smoking, stopped drinking alcohol, stopped eating red meat, sugars, and fried food s decade before my heart attack actually took place.  Additionally, my blood pressure was low, my cholesteral was low, no family member with heart issues...  so NO TYPICAL MARKERS that underscore a heart attack...

Therefore it must have been stress...

About this same time frame, I was diagnosed with non-Hodgkin's "B" Cell Lymphoma and five years after that I was diagnosed with Melanoma that spread from my foot to my groin to my neck.  I am currently being treated for 2 cancers simultaneously and the meds do not seem to be fighting each other which is a good sign.

My healthcare costs are somewhere between $500,000 and $750,000 depending upon the various tests that I have to see if my cancers have spread.  These tests are typically a CT or a PET scan that I received quarterly.  I also have quarterly tests for my heart as well and since my PSA results are high, I have been seeing a Urologist and have had a biopsy of my prostate.  Since my nuclear stress test for my heart showed a blockage, I have had a recent heart cath that actually revealed NO PROBLEMS at all...  but, these tests are expensive.

My health is STABLE and that is why I have healthcare happiness...

My CT Scan

Today was my quarterly CT scan to see if there was any metabolic activity in either one of my cancers:  Lymphoma and Melanoma.

Unlike PET scans, patients can eat or drink anything they want right up to the point that they start the machine.  Actually, a few minutes before because you have to lay down on this movable rack and they have to position your head and knees and arms.

Prior to any of this, a nurse must insert an IV line into your arm but in my case, I have a port for them to access so they have to call upon a more skilled nurse.  Wait time is usually 30 minutes or more depending upon how busy they are.

However, I was there at 7:30 am this morning and those nurses start at 8:00 am so I was the first person on his list.

Once the line is hooked up, they start they insert some kind of dye into your body that makes you feel like you have to go to the bathroom or for some that you peed in your pants.

The actually test is 3 passes in the machine and patients are usually in and out in less than 5 minutes.

The machine is like a huge doughnut hole so only a fraction of your body is inside the machine and the rack that you lay on can slide so that from your head down to your feet can be scanned.

A PET scan, you are a lot more enclosed...  almost your entire body...  and, it moves much slower so a PET scan will take about 15-20 minutes and for a while there is the feeling that you are in a coffin.  I usually tilt my head back so I can see outside the machine and that helps.

An MRI is different and you are totally enclosed and I have to be knocked out for that scan to happen.  I have only had one so far...  knock on wood as they say...

SIDE EFFECTS

2:16 am} and, I cannot sleep...

Retired, so I worry about very little other than what am I going to do tomorrow...

My eyes and body feel tired but when I lay down in the bed, I feel wide awake and just lay there wondering when the drowsiness will put me to sleep...

So, here I am drinking coffee with a little Cappuccino Mix in it to make it swallow a little easier...   and actually, I think I have become addicted to this sugar-free or fat-free mix because straight coffee no longer tastes good to me which is typically all I used to drink after being in the Navy...

I was in communications and worked in the Radio Shack on the USS Recovery ARS-43 which was a salvage and rescue ship.  It had less than 100 men aboard her and every two years she would spend 6 months in the Mediterranean Sea patrolling outfitted with the latest surveillance gear before leaving port at Little Creek, VA which was part of the Norfolk Naval Base.

About 1:00 am this morning I awoke from sleep because I had to take a piss and after laying back down in my soft, comfortable warm bed, laid there for a hour unable to return to sleep.

Because of my non-Hodgkin's "B" cell Lymphoma, I take 2 - 140 mg tablets of IMBRUVICA  daily which is considered an Immunotherapy Drug, not a Chemotherapy Drug.

Common side effects of Imbruvica include:

low platelet count,

diarrhea,

neutropenia,

anemia,

fatigue,

musculoskeletal pain,

muscle spasms,

joint pain,

swelling of the extremities,

fever,

upper respiratory tract infection,

cough,

shortness of breath,

nausea,

bruising,

indigestion,

constipation,

rash,

abdominal pain,

vomiting,

decreased appetite,

swelling of the mouth and lips,

urinary tract infection,

pneumonia,

skin infections,

sinus infection,

weakness,

nosebleed,

decreased appetite,

dehydration,

dizziness, and

headache.

Of course, my inability to sleep could be coming from my enlarged prostate and a PSA count that was twice what it was last year and over the recommended amount and the reason why I am going to a Urologist to see if I have prostate cancer next week.

In addition to my IMBRUVICA, I am receiving a monthly infusion of OPDIVO to control my Metastatic Melanoma which in a matter of 41/2 years went from my foot to my groin to my neck; although, when it was removed from my neck, the Melanoma was DEAD thanks to the radiation treatments I had along with the OPDIVO infusions; apparently, when OPDIVO is combined with radiation, the radiation super-charges the OPDIVO to fight the Melanoma...   lucky me...

Common side effects of Opdivo include:

• fatigue
• rash
• itching
• cough
• upper respiratory tract infection
• swelling of the extremities
• shortness of breath
• muscle pain
• decreased appetite
• nausea
• vomiting
• constipation
• diarrhea
• weakness
• swelling
• fever
• abdominal pain
• chest pain
• joint pain
• weight loss
• irregular heartbeat
• eye inflammation
• infusion-related reactions
• increased amylase
• increased lipase
• dizziness
• numbness and tingling
• skin peeling
• skin redness and
• psoriasis.

YEAH...  I was pretty frigging amazed when I saw these two lists too...  I have been taking immunotherapy drugs for two years but I have also been taking chemotherapy drugs for 10 years, all of which basically has the same side effects...   

WHILE sleeplessness in not on the list...  WTF...  I experience it once or twice a week like clockwork...